---
title: "Report of Youth Instrument Completion at 9 months Follow-up  for All Participants by Cohort"
output: html_document
date: "2025-11-07"

---
# Introduction

This report details the youth instrument completion status for all participants during 9 months follow-up phase across various cohorts. The objective of this analysis is to provide a comprehensive overview of data collection completion rates within each cohort during this follow-up period.
For this analysis, the completion status is evaluated at 392 days following baseline for the cohorts.

**Age eligibility criteria for the instruments:**

- **pedsql_standard_core_scale_child_complete:** Eligible participants are those aged 5 years and older.
- **pedsql_standard_multidimensional_fatigue_scale_chi_complete:** Eligible participants are those aged 5 years and older.
- **child_revised_childrens_anxiety_and_depression_sca_complete:** Eligible participants are those aged 8 years and older.

Each table included in this report summarizes three key pieces of information: the total number of "Complete" for each instrument, the total number of participants involved, and the percentage.

Additionally, visual representations in the form of bar graphs are provided to enhance the understanding of the completion rates. The first graph displays the total completions by instrument, offering insights into which instruments have been most thoroughly completed.The second graph illustrates the average completion percentages by site, allowing for a quick assessment of the performance across different sites. 


9M FOLLOW_UP_YTH

Number of participants per cohort and per site

cohort ach cheo chrim chul chusj cwbc hme iwk jch khsc lhsc mch sch sickkids Total_Participants
Symptomatic COVID-19 Illness 43 18 27 5 29 55 13 10 22 29 5 34 21 50 361
Suspected Myocarditis and Pericarditis 11 2 0 0 3 2 4 0 3 1 8 9 3 1 47
Suspected MIS-C 3 1 3 0 9 4 5 4 0 1 1 1 0 13 45
Incidental/Non-symptomatic COVID-19 0 0 0 0 5 0 0 1 0 0 1 0 0 0 7
ED/ward patients with acute non-febrile or mild febrile illness or accidental injury, outpatients requiring bloodwork for other reasons 0 0 0 0 0 0 0 0 0 4 0 0 0 0 4
Total 57 21 30 5 46 61 22 15 25 35 15 44 24 64 464

Results by cohort

Cohort 1 : Symptomatic COVID-19 Illness

Sites
instrument ach cheo chrim chul chusj cwbc hme iwk jch khsc lhsc mch sch sickkids
child_revised_childrens_anxiety_and_depression_sca_complete >= 8 11/27 (41%) 3/9 (33%) 3/11 (27%) 0/4 (0%) 4/16 (25%) 5/37 (14%) 1/12 (8%) 4/5 (80%) 2/15 (13%) 12/16 (75%) 0/4 (0%) 2/15 (13%) 3/11 (27%) 11/29 (38%)
pedsql_standard_core_scale_child_complete >= 5 20/43 (47%) 6/18 (33%) 5/27 (19%) 1/5 (20%) 14/29 (48%) 10/55 (18%) 3/13 (23%) 7/10 (70%) 3/22 (14%) 24/29 (83%) 1/5 (20%) 6/34 (18%) 9/21 (43%) 14/50 (28%)
pedsql_standard_multidimensional_fatigue_scale_chi_complete_complete >= 5 19/43 (44%) 6/18 (33%) 5/27 (19%) 1/5 (20%) 14/29 (48%) 10/55 (18%) 2/13 (15%) 7/10 (70%) 3/22 (14%) 24/29 (83%) 1/5 (20%) 6/34 (18%) 10/21 (48%) 13/50 (26%)
Notes:
(0 - 10%): Not completed; (10 - 50%): Partially completed; (50 - 75%): Over half completed; (75 - 99%): Mostly completed; (100%): Completed

Cohort 2 : Suspected Myocarditis and Pericarditis

Sites
instrument ach cheo chusj cwbc hme jch khsc lhsc mch sch sickkids
child_revised_childrens_anxiety_and_depression_sca_complete >= 8 4/11 (36%) 0/1 (0%) 0/3 (0%) 0/2 (0%) 2/4 (50%) 1/2 (50%) 1/1 (100%) 2/8 (25%) 1/9 (11%) 2/2 (100%) 0/0 (0%)
pedsql_standard_core_scale_child_complete >= 5 5/11 (45%) 0/2 (0%) 0/3 (0%) 0/2 (0%) 2/4 (50%) 1/3 (33%) 1/1 (100%) 2/8 (25%) 1/9 (11%) 3/3 (100%) 0/1 (0%)
pedsql_standard_multidimensional_fatigue_scale_chi_complete_complete >= 5 5/11 (45%) 0/2 (0%) 0/3 (0%) 0/2 (0%) 2/4 (50%) 1/3 (33%) 1/1 (100%) 2/8 (25%) 1/9 (11%) 3/3 (100%) 0/1 (0%)
Notes:
(0 - 10%): Not completed; (10 - 50%): Partially completed; (50 - 75%): Over half completed; (75 - 99%): Mostly completed; (100%): Completed

Cohort 3 :Suspected MIS-C

Sites
instrument ach cheo chrim chusj cwbc hme iwk khsc lhsc mch sickkids
child_revised_childrens_anxiety_and_depression_sca_complete >= 8 0/1 (0%) 1/1 (100%) 1/2 (50%) 3/5 (60%) 1/3 (33%) 2/4 (50%) 1/1 (100%) 0/0 (0%) 1/1 (100%) 0/1 (0%) 3/6 (50%)
pedsql_standard_core_scale_child_complete >= 5 2/3 (67%) 1/1 (100%) 1/3 (33%) 5/9 (56%) 2/4 (50%) 3/5 (60%) 4/4 (100%) 1/1 (100%) 1/1 (100%) 0/1 (0%) 7/13 (54%)
pedsql_standard_multidimensional_fatigue_scale_chi_complete_complete >= 5 2/3 (67%) 1/1 (100%) 1/3 (33%) 5/9 (56%) 2/4 (50%) 3/5 (60%) 4/4 (100%) 1/1 (100%) 1/1 (100%) 0/1 (0%) 7/13 (54%)
Notes:
(0 - 10%): Not completed; (10 - 50%): Partially completed; (50 - 75%): Over half completed; (75 - 99%): Mostly completed; (100%): Completed

Cohort 4 : Incidental/Non-symptomatic COVID-19

Sites
instrument chusj iwk lhsc
child_revised_childrens_anxiety_and_depression_sca_complete >= 8 1/2 (50%) 1/1 (100%) 0/1 (0%)
pedsql_standard_core_scale_child_complete >= 5 4/5 (80%) 1/1 (100%) 0/1 (0%)
pedsql_standard_multidimensional_fatigue_scale_chi_complete_complete >= 5 4/5 (80%) 1/1 (100%) 0/1 (0%)
Notes:
(0 - 10%): Not completed; (10 - 50%): Partially completed; (50 - 75%): Over half completed; (75 - 99%): Mostly completed; (100%): Completed