---
title: "Report of Instrument Completion at 9 months Follow-up for All Participants by Cohort""
output: html_document
date: "2025-11-07"
---
# Introduction
This report details the instrument completion status for all participants during the 9 months follow-up phase across various cohorts. The objective of this analysis is to provide a comprehensive overview of data collection completion rates within each cohort during this follow-up period.
For this analysis, the completion status is evaluated at 392 days following baseline for the cohorts.
Each table included in this report summarizes three key pieces of information: the total number of "Complete" for each instrument, the total number of participants involved, and the percentage.
Additionally, visual representations in the form of bar graphs are provided to enhance the understanding of the completion rates. The first graph displays the total completions by instrument, offering insights into which instruments have been most thoroughly completed.The second graph illustrates the average completion percentages by site, allowing for a quick assessment of the performance across different sites.
9M FOLLOW_UP
Number of participants per cohort and per site
|
cohort
|
ach
|
cheo
|
chrim
|
chul
|
chusb
|
chusj
|
cwbc
|
hme
|
iwk
|
jch
|
jpch
|
khsc
|
lhsc
|
mch
|
sch
|
sickkids
|
Total_Participants
|
|
Symptomatic COVID-19 Illness
|
151
|
68
|
111
|
72
|
4
|
234
|
159
|
89
|
23
|
60
|
5
|
83
|
19
|
122
|
87
|
103
|
1390
|
|
Suspected Myocarditis and Pericarditis
|
13
|
3
|
0
|
0
|
0
|
4
|
2
|
6
|
0
|
3
|
0
|
1
|
8
|
10
|
3
|
2
|
55
|
|
Suspected MIS-C
|
5
|
2
|
8
|
0
|
0
|
25
|
9
|
24
|
7
|
0
|
0
|
1
|
2
|
1
|
0
|
34
|
118
|
|
Incidental/Non-symptomatic COVID-19
|
0
|
0
|
0
|
2
|
0
|
7
|
0
|
0
|
1
|
0
|
0
|
0
|
1
|
0
|
0
|
0
|
11
|
|
ED/ward patients with acute non-febrile or mild febrile illness or accidental injury, outpatients requiring bloodwork for other reasons
|
0
|
0
|
0
|
0
|
0
|
8
|
0
|
1
|
0
|
0
|
0
|
15
|
0
|
0
|
0
|
1
|
25
|
|
Total
|
169
|
73
|
119
|
74
|
4
|
278
|
170
|
120
|
31
|
63
|
5
|
100
|
30
|
133
|
90
|
140
|
1599
|
Results by cohort
Cohort 1 : Symptomatic COVID-19 Illness
|
|
Sites
|
|
instrument
|
ach
|
cheo
|
chrim
|
chul
|
chusb
|
chusj
|
cwbc
|
hme
|
iwk
|
jch
|
jpch
|
khsc
|
lhsc
|
mch
|
sch
|
sickkids
|
Total_Participants
|
|
all_patients_follow_up_interview_complete
|
136/151 (90%)
|
34/68 (50%)
|
63/111 (57%)
|
34/72 (47%)
|
4/4 (100%)
|
190/234 (81%)
|
86/159 (54%)
|
27/89 (30%)
|
23/23 (100%)
|
17/60 (28%)
|
0/5 (0%)
|
75/83 (90%)
|
13/19 (68%)
|
82/122 (67%)
|
44/87 (51%)
|
61/103 (59%)
|
1390
|
|
functional_status_scale_fss_survey_complete
|
88/151 (58%)
|
35/68 (51%)
|
51/111 (46%)
|
27/72 (38%)
|
4/4 (100%)
|
142/234 (61%)
|
86/159 (54%)
|
23/89 (26%)
|
23/23 (100%)
|
12/60 (20%)
|
0/5 (0%)
|
73/83 (88%)
|
12/19 (63%)
|
60/122 (49%)
|
44/87 (51%)
|
57/103 (55%)
|
1390
|
|
patient_status_complete
|
139/151 (92%)
|
35/68 (51%)
|
109/111 (98%)
|
72/72 (100%)
|
4/4 (100%)
|
217/234 (93%)
|
159/159 (100%)
|
84/89 (94%)
|
23/23 (100%)
|
52/60 (87%)
|
0/5 (0%)
|
80/83 (96%)
|
13/19 (68%)
|
88/122 (72%)
|
51/87 (59%)
|
103/103 (100%)
|
1390
|
|
pedsql_standard_core_infant_scale_parent_complete
|
93/151 (62%)
|
34/68 (50%)
|
51/111 (46%)
|
28/72 (39%)
|
4/4 (100%)
|
149/234 (64%)
|
69/159 (43%)
|
26/89 (29%)
|
23/23 (100%)
|
12/60 (20%)
|
0/5 (0%)
|
73/83 (88%)
|
12/19 (63%)
|
61/122 (50%)
|
44/87 (51%)
|
57/103 (55%)
|
1390
|
|
pedsql_standard_family_impact_module_complete
|
90/151 (60%)
|
35/68 (51%)
|
51/111 (46%)
|
28/72 (39%)
|
4/4 (100%)
|
142/234 (61%)
|
67/159 (42%)
|
23/89 (26%)
|
23/23 (100%)
|
12/60 (20%)
|
0/5 (0%)
|
73/83 (88%)
|
12/19 (63%)
|
60/122 (49%)
|
44/87 (51%)
|
58/103 (56%)
|
1390
|
|
pedsql_standard_multidimensional_fatigue_scale_par_complete_follow_up
|
39/66 (59%)
|
15/28 (54%)
|
23/43 (53%)
|
3/11 (27%)
|
1/1 (100%)
|
36/67 (54%)
|
29/76 (38%)
|
8/18 (44%)
|
12/12 (100%)
|
7/33 (21%)
|
NA
|
42/48 (88%)
|
6/10 (60%)
|
31/68 (46%)
|
22/39 (56%)
|
23/48 (48%)
|
568
|
|
parent_revised_childrens_anxiety_and_depression_sc_complete_follow_up
|
13/24 (54%)
|
3/7 (43%)
|
5/10 (50%)
|
2/5 (40%)
|
NA
|
6/14 (43%)
|
8/30 (27%)
|
1/5 (20%)
|
4/4 (100%)
|
3/15 (20%)
|
NA
|
14/16 (88%)
|
0/2 (0%)
|
6/16 (38%)
|
6/11 (55%)
|
7/16 (44%)
|
175
|
|
Notes:
|
|
(0 - 10%): Not completed; (10 - 50%): Partially completed; (50 - 75%): Over half completed; (75 - 99%): Mostly completed; (100%): Completed; NA: Not applicable
|
Cohort 2 : Suspected Myocarditis and Pericarditis
|
|
Sites
|
|
instrument
|
ach
|
cheo
|
chusj
|
cwbc
|
hme
|
jch
|
khsc
|
lhsc
|
mch
|
sch
|
sickkids
|
Total_Participants
|
|
functional_status_scale_fss_survey_complete
|
6/13 (46%)
|
1/3 (33%)
|
1/4 (25%)
|
0/2 (0%)
|
3/6 (50%)
|
1/3 (33%)
|
1/1 (100%)
|
2/8 (25%)
|
1/10 (10%)
|
3/3 (100%)
|
0/2 (0%)
|
55
|
|
myop_follow_up_interview_complete
|
12/13 (92%)
|
1/3 (33%)
|
4/4 (100%)
|
0/2 (0%)
|
0/6 (0%)
|
0/3 (0%)
|
1/1 (100%)
|
1/8 (12%)
|
3/10 (30%)
|
2/3 (67%)
|
2/2 (100%)
|
55
|
|
myop_followup_diagnostic_procedures_performed_complete
|
12/13 (92%)
|
3/3 (100%)
|
4/4 (100%)
|
2/2 (100%)
|
4/6 (67%)
|
1/3 (33%)
|
1/1 (100%)
|
4/8 (50%)
|
9/10 (90%)
|
3/3 (100%)
|
2/2 (100%)
|
55
|
|
patient_status_complete
|
12/13 (92%)
|
1/3 (33%)
|
4/4 (100%)
|
2/2 (100%)
|
6/6 (100%)
|
2/3 (67%)
|
1/1 (100%)
|
1/8 (12%)
|
3/10 (30%)
|
2/3 (67%)
|
2/2 (100%)
|
55
|
|
pedsql_standard_core_infant_scale_parent_complete
|
6/13 (46%)
|
1/3 (33%)
|
2/4 (50%)
|
0/2 (0%)
|
3/6 (50%)
|
1/3 (33%)
|
1/1 (100%)
|
2/8 (25%)
|
2/10 (20%)
|
3/3 (100%)
|
0/2 (0%)
|
55
|
|
pedsql_standard_family_impact_module_complete
|
6/13 (46%)
|
1/3 (33%)
|
2/4 (50%)
|
0/2 (0%)
|
3/6 (50%)
|
1/3 (33%)
|
1/1 (100%)
|
2/8 (25%)
|
2/10 (20%)
|
3/3 (100%)
|
0/2 (0%)
|
55
|
|
pedsql_standard_multidimensional_fatigue_scale_par_complete_follow_up
|
6/13 (46%)
|
1/3 (33%)
|
0/3 (0%)
|
0/2 (0%)
|
2/4 (50%)
|
1/2 (50%)
|
1/1 (100%)
|
2/8 (25%)
|
1/8 (12%)
|
3/3 (100%)
|
NA
|
47
|
|
parent_revised_childrens_anxiety_and_depression_sc_complete_follow_up
|
5/11 (45%)
|
0/1 (0%)
|
0/3 (0%)
|
0/2 (0%)
|
2/4 (50%)
|
1/2 (50%)
|
1/1 (100%)
|
2/8 (25%)
|
1/7 (14%)
|
2/2 (100%)
|
NA
|
41
|
|
Notes:
|
|
(0 - 10%): Not completed; (10 - 50%): Partially completed; (50 - 75%): Over half completed; (75 - 99%): Mostly completed; (100%): Completed; NA: Not applicable
|
Cohort 3 : Suspected MIS-C
|
|
Sites
|
|
instrument
|
ach
|
cheo
|
chrim
|
chusj
|
cwbc
|
hme
|
iwk
|
khsc
|
lhsc
|
mch
|
sickkids
|
Total_Participants
|
|
functional_status_scale_fss_survey_complete
|
3/5 (60%)
|
2/2 (100%)
|
5/8 (62%)
|
17/25 (68%)
|
3/9 (33%)
|
4/24 (17%)
|
7/7 (100%)
|
1/1 (100%)
|
1/2 (50%)
|
0/1 (0%)
|
20/34 (59%)
|
118
|
|
misc_current_misc_event_new_diagnostics_complete
|
5/5 (100%)
|
2/2 (100%)
|
6/8 (75%)
|
22/25 (88%)
|
2/9 (22%)
|
0/24 (0%)
|
7/7 (100%)
|
1/1 (100%)
|
1/2 (50%)
|
0/1 (0%)
|
18/34 (53%)
|
118
|
|
misc_follow_up_interview_12m_only_complete
|
5/5 (100%)
|
2/2 (100%)
|
6/8 (75%)
|
22/25 (88%)
|
2/9 (22%)
|
0/24 (0%)
|
7/7 (100%)
|
1/1 (100%)
|
1/2 (50%)
|
0/1 (0%)
|
18/34 (53%)
|
118
|
|
misc_follow_up_interview_complete
|
5/5 (100%)
|
2/2 (100%)
|
6/8 (75%)
|
22/25 (88%)
|
2/9 (22%)
|
0/24 (0%)
|
7/7 (100%)
|
1/1 (100%)
|
1/2 (50%)
|
0/1 (0%)
|
18/34 (53%)
|
118
|
|
patient_status_complete
|
5/5 (100%)
|
2/2 (100%)
|
8/8 (100%)
|
25/25 (100%)
|
9/9 (100%)
|
24/24 (100%)
|
7/7 (100%)
|
1/1 (100%)
|
1/2 (50%)
|
0/1 (0%)
|
34/34 (100%)
|
118
|
|
pedsql_standard_core_infant_scale_parent_complete
|
3/5 (60%)
|
2/2 (100%)
|
5/8 (62%)
|
18/25 (72%)
|
3/9 (33%)
|
4/24 (17%)
|
7/7 (100%)
|
1/1 (100%)
|
1/2 (50%)
|
0/1 (0%)
|
21/34 (62%)
|
118
|
|
pedsql_standard_family_impact_module_complete
|
3/5 (60%)
|
2/2 (100%)
|
5/8 (62%)
|
17/25 (68%)
|
3/9 (33%)
|
4/24 (17%)
|
7/7 (100%)
|
1/1 (100%)
|
1/2 (50%)
|
0/1 (0%)
|
21/34 (62%)
|
118
|
|
pedsql_standard_multidimensional_fatigue_scale_par_complete_follow_up
|
3/5 (60%)
|
2/2 (100%)
|
5/8 (62%)
|
14/18 (78%)
|
2/7 (29%)
|
3/19 (16%)
|
5/5 (100%)
|
1/1 (100%)
|
1/2 (50%)
|
0/1 (0%)
|
17/30 (57%)
|
98
|
|
parent_revised_childrens_anxiety_and_depression_sc_complete_follow_up
|
0/1 (0%)
|
1/1 (100%)
|
1/3 (33%)
|
6/6 (100%)
|
1/2 (50%)
|
2/4 (50%)
|
2/2 (100%)
|
NA
|
1/1 (100%)
|
0/1 (0%)
|
6/9 (67%)
|
30
|
|
Notes:
|
|
(0 - 10%): Not completed; (10 - 50%): Partially completed; (50 - 75%): Over half completed; (75 - 99%): Mostly completed; (100%): Completed; NA: Not applicable
|
